Healthcare Utilization Patterns Among Commercially Insured Patients with Prader-Willi Syndrome: A Retrospective Analysis of Administrative Claims

Home / Intelligence / Scientific Publications / Healthcare Utilization Patterns Among Commercially Insured Patients with Prader-Willi Syndrome: A Retrospective Analysis of Administrative Claims

Prader-Willi syndrome (PWS) is a complex orphan endocrine disease characterized by hyperphagia and abnormal food-related behaviors that contribute to severe morbidity and early mortality along with a significant burden on patients and caregivers. Life-long medical care is required but the consistency of services rendered to this population has not been evaluated. This study characterized use of US hospital care, specialty physician care, and growth hormone (GH) therapy for PWS patients at different life stages.

Authors

Merlin Butler, Ann Manzardo, Theresa Strong, Justin Li, David Yin, Marissa Suh, Abigail Silber, Sina Aghsaei, Kevin Francis, Nandini Hadker, Michael Yeh, Shawn Czado, Jennifer Miller

Journal

Journal of the Endocrine Society; Volume 4; Issue Supplement_1; April-May 2020

View publication

Related Intelligence

Scientific Publications

ISPOR EU 2024 Research Posters

RWD8 Maximizing the Value of Real-World Data in HEOR – a Comparative Assessment of Claims and Emr Sources in Europe Authors: Diehl M, Saikumar S, Furrer DE, Kulkarni A, Patel N, Hadker N Abstract: OBJECTIVES: Heterogeneity in the European RWD landscape, both regionally and across vendors, requires fit-for-purpose dataset selection in HEOR studies. Visibility into […]

Scientific Publications

ISPOR US 2024 Research Posters

Healthcare Resource Utilization of Patients with Short Bowel Syndrome Dependent on Parenteral Support: A Retrospective Claims Analysis AUTHOR(S): Ali A1, Micic D2, Gallivan M1, Kulkarni A3, Henderson J4, Mitchell G4 1Trinity Life Sciences, Waltham, MA, USA, 2University of Chicago Medical Center, Gastroenterology, Hepatology, and Nutrition, Chicago, IL, USA, 3Trinity Life Sciences, Malden, MA, USA, 4VectivBio AG, Basel, Basel, Switzerland […]

Scientific Publications

ISPOR EU 2023 Research Posters

Implications of the Implementation of the Joint Committee Assessment on Launch Planning for Medical Technologies in Europe Acosta Luis S1, O’Hara M2, Yeh M2 1Trinity Partners, LLC, London, UK, 2Trinity Life Sciences, Waltham, MA, USA The EU-wide Joint Clinical Assessment (JCA) is set to be operational from January 2025. The Trinity team reviewed the available literature […]